BANGOR – Chasing the Cure Crop and Shop event benefiting the Histiocyosis Association of America taking place at the Brewer Auditorium at 10:00 a.m.Â Oct. 2. This event is in honor of Griffin Faulkner, of Bangor. Faulkner is a two year old boy who has langerhans cell histiocytosis, a rare blood disease. The event will include a day long scrapbook crop from 10-9, a used book sale from 10-2, a bake sale and a silent auction. All proceeds will benefit the Histiocytosis Association of America (www.histio.org)
Histiocytosis is a rare condition afflicting children and young adults. Similar to cancer, that it is treated primarily with radiation and chemotherapy. Since it is very rare, funding is severely limited.
The Histiocytosis Association of America (HAA) is an international partnership of parents, patients, physicians and friends bound together by their interest and attachment to histolytic disorders. The HAA was founded in 1986, by Jeff and Sally Toughill and is located in Pitman, NJ. In an effort to compensate for the shortage of information on the disorders and the small number of individuals and families dealing with them, the Association provides a variety of educational and emotional support programs to its members, as well as other interested parties. In addition, the Association promotes scientific and medical investigation into histolytic disorders through its research program with the aim of establishing better treatments, a cure, and prevention of the diseases.
In January, Griffin celebrated his second birthday. Two days later he had a large bump on his forehead that hadnâ€™t been there before. His parents, Cathy Hamel and Mark Faulkner, took him to their physician. After an MRI, it was determined that the bump on his forehead was a lesion caused by the disease Langerhans Cell Histiocytosis. Within the next week, Griffin was having surgery to remove the lesion and a quarter-sized portion of his skull. The disease had bore a hole through his small skull. A metal plate was put in place to protect the brain. The family was relieved when Griffin came through the surgery and was told that the lesion had been removed fully. Because LCH is an incurable blood disease that attacks the organs, a body scan was done to make sure that Griffin had no other lesions. All of his follow-up tests came back clear. However a lesion began to grow on top of his surgical incision and had to be removed twice. Griffin will be monitored every three months to be sure that his disease does not flare up again. Griffin was diagnosed with Langerhans Cell Histiocytosis of the bone and skin.
Contact Name: Kimberly Slaven
Telephone Number: (207)942-5016